Sunday, January 11, 2009

The View From Here

If you've read my blog for any length of time, you know I have MS.

I take no medications for it as I have lousy health care and strange reactions to most medications. Fortunately, my diagnosis has always been the least severe form of MS. It is a strange, confounding disease that presents challenges at the most unlikely times. It is, in my experience, not a disease that one can predict will "be better" or "improve" if one follows certain protocols. Sometimes they work, sometimes not.

Of late, it seems that I am spiraling into the longest, strangest depths of an episode or phase or whatever the other term is that escapes my cloudy mind just now.

It has taken me 15 minutes to write this much!

And so, I will be posting less often. I struggle to read and comprehend, let alone write, and, for the first time ever, I fear the various symptoms I'm experiencing will stick around long term.

I appreciate all of you and I hope you all keep blogging. And, be willing to read people you disagree with. The mind is a terrible thing to waste and compartmentalization is constricting.



HermitJim said...

Hey Treesong...just know that our thoughts are with ya all the time, my friend! God bless!

Cygnus MacLlyr said...

Best of wishes to you, Treesong!
I'll keep reading long as you keep posting... frequency a non-issue.

Take care.

Mayberry said...

My prayers are with you Tree... It's hard to comprehend why such things as MS exist, and painful to see the effects on people. Especially good people such as yourself. Take care of yourself my friend.....

Anonymous said...

Treesong, hang in there!!! I hope you feel better soon. Is there not some kind of assistance you can receive to get medical attention? You know that there is Prescription Partnership of America that is available for the expensive prescriptions. I hate to hear that you suffer when there is help out there for you. I also know that when you are sick, if you dont have a strong advocate that sometimes you just dont have the energy to pursue things for yourself, your just too damn tired and sick! Call one of your children and get them to come and help you out for a bit.

Bustednuckles said...

I am saddened to hear of you having such a hard time, I really, really enjoy your writing and sharing.
God bless ya and I hope you can have peace. Winters are tough, Spring is a ways away yet but very much looked forward to.

Lois said...

Hey TreeSong!

In previous posts you mentioned you worked, however long ago that was. Were the jobs on the books? If you have 10 years creditable on the books employment, you can be eligible for SS Disability at any age.

MS is considered an autoimmune disease, such as Lupus or Rheumatoid Arthritis. I have been on SS Disability for over 12 years.
I had to stop working due to Scleroderma, which is somewhat similar to Lupus. You can receive Medicare, (not Medicaid) along with your disability benefits. Call SS and see if this can work for you.

I can email you more info if you want to give it a go.

Blessings to you,

Nomad said...

Keep fightin our prayers are with you treesong

Preparedwarrior said...

I am sorry to hear of your medical condition. You are on my daily list of site to read, and I will continue to look there. Please keep posting when you can. You have an audience who cares about you and Sweetie. I love to hear about your thoughts and goings-on.

Mamma Bear said...

I do hope you wake up tomorrow a new woman! It will be a sad day when I can't read a post from you but I do understand a disability.

Feel better real soon!

Patricia said...

Ah, Treesong. That's very sad. I really enjoy your blog, your writing, your fine sensibility. I will pray for you, and you will be in my thoughts. And I'll keep checking in, too.

deafnsmart said...

Treesong!!! Your blog is truly one of my very best favorites!!! I will miss you so!!! I hope you find a way to get better...

Staying Alive said...

I go along with what Patricia said. But while we have to wait I want you to know that I miss you and wish your healthy return. You are one of the good ones. For sure.


Anonymous said...

Hey Treesong, Just checking in to see how you are doing. Ill be back tomorrow. Get well and take care.